Wednesday, February 19, 2014

I have something to get off my chest...

I have something to get off my chest:  My boobs.

I have breast cancer.

Although I have absolutely no symptoms, I feel great, I live a fairly low risk for cancer life, I went and had my very first mammogram just two months ago. I'm 48 years old and have breast cancer up my family tree. Then I had a second mammogram and ultrasound. Just a couple of weeks ago on Feb 6th, I had two biopsies done: one was an ultrasound biopsy and one was a stereotactic biopsy.

I received a phone call from my doctor on Feb 10th and she said "Mary, you have breast cancer."  I said, "Oh that's great. I didn't think anything was wrong. Thanks for calling."  And then she said, "No, Mary, listen. Your biopsies are both positive. You have breast cancer."  I think I've been in shock since.  I have been telling everyone who asks me if I got my results that no, I don't have them yet. I lied. I just needed to absorb this news.

She had me make an appointment at a surgical center. They wanted me to bring my records and films. Luckily, this gave me the perfect opportunity to find out what details are. Just saying "breast cancer" is pretty vague.  I'm not a fan of big bad vagueness. It's like too much darkness and I don't know what kind of creepy monsters are hiding in all of that darkness. I have to know.

I went to a local Breast Cancer Resource Center and had a tour and spoke with a counselor. She had a warm smile, was very informative and the facility was great. It's called "Michelle's Place". It has a library, support groups, beauty shop with makeup and wigs and a hair stylist, clothing, undergarments, prosthetic pieces, and lots of loving survivors and volunteers. Best thing though, all of their services are free!  They even have a children's support group. I borrowed some books from the library and they gave me a "toolkit" for the newly diagnosed. I think I'm gonna love this place!

Today, I had a consultation with a surgeon to discuss the severity of the cancer and the my options for treatment. This was the appointment where the truth comes out and I can honestly say I was very anxious about learning the truth about what I'm about to face. Keith took the day off to come with me so that I would have someone to help me listen and ask questions. He was great. I'm very lucky to have such a supportive and wonderful husband!

The doctor was very professional and yet, very personal. I really like him. In fact, I don't even feel the need for a second opinion because this guy is the kind of doctor that I appreciate.  He explained my type of breast cancer - Did you know there are 200 kinds of breast cancer? Neither did I. - and  he laid out my treatment options.

I have two spots of breast cancer. They are different types and in different stages. I must have had one of them before the other one sprouted up. The more mature spot is aggressive and it has sprouted a baby bud, and it has escaped from the milk duct and is invading the breast tissue. If I had waited another couple of years to have my first mammogram, I may have had to fight for my life instead of just face a surgery.

Ha. Just a surgery. I have three surgical options to choose from. None of them are easy.  All are going to be rough and I'm going to have to be tough and lay low to recuperate. One of the surgical options gives me the best chance of never having to do this again. The way my cancer is in multiple locations and different stages leads the doctor to believe that I will keep getting breast cancer spots popping up over my lifetime and I will have to have surgery time and time again as it pops up.  A lumpectomy or a single mastectomy will get rid of the cancer I have now, but I'll most likely get breast cancer again in the tissue left behind.  The third option and his favorite due to the circumstances, is a double mastectomy with a lymph node biopsy and reconstruction. 

Just call me Angelina.

This double will get rid of my cancer and get rid of the little black raincloud that I would always have hanging over me for the rest of my life.  If I don't get the double, then I will always be worrying if the cancer is back. I don't want to live with that worry every day, forever. I also do not want to do this twice. It is both a cure and a prevention.  I may avoid chemo and radiation depending on the lymph node biopsy. I won't know that until after the surgery.

Don't tell my kids. Please!  My children are young. My daughters are 7 and 5 years old. My grandsons are 3, 2, and 1. They are too young to understand the gravity of the situation combined with the fact that isn't life threatening. Just life changing.  They know the word cancer. They know their beloved dog had cancer, she had surgery, and the cancer came back. They know their dog died from cancer. That's what they know and understand about cancer. My greatest concern about me having breast cancer is scaring my kids. I do not want them to fear for my life nor for theirs. Keith and I will figure out how to tell them and we will choose our words wisely. Before we do, I'd like to consult the counselor who runs the children's support group at the Breast Cancer Resource Center. If my children are in my presence, then don't talk to me about my cancer. Leave a comment, send an email, zip me a text. Thanks!

Please say a few prayers for my sisters and my four daughters. I already have breast cancer; they don't and their risk for it just went up a notch. I appreciate your prayers and your positive thoughts for me and my family. It's empowering!

 This is all new to me. If I didn't say it here, then I don't know the answer. If you find a good source of information, please share it in the comments.

I will be scheduled for the double mastectomy surgery in April. That's only 6 - 8 weeks away. I will need help. My husband and daughters will help out as much as they can, but we all know who does the herding of children around here: me. I will need help taking the kids to school and picking them up, taking them to the park to play, walking the dog, doing some laundry and feeding the kids, helping them with homework, and all of that sort of thing. I'm worried about being down and out of commission. I'll write a blog post later about what I think I might need help with while my husband is at work and I'm recovering from surgery. My mom has already expressed how disappointed she is that she can't come out and stay to help, but she is much more needed at home. I am so very lucky to have lots of wonderful generous local friends!

This whole post, like this whole day, I'm operating in a very cold mode. I'm trying to absorb information, make big decisions, communicate effectively. I am working very hard to suppress my anxiety and my feelings right now so that I can think straight. I'll cry into my pillow later.

I don't want breast cancer. I really don't. I'm overwhelmed with the idea of me having cancer, me having surgery and all of the information. I don't want this. I don't want fake boobs, I don't want surgery scars, I don't want radiation tattoos.  I don't want to wear pink and have pink ribbon decor on everything. I don't want breast cancer to define me. I just want to be me. For those reasons, I'm going to get the double mastectomy and reconstruction. I'm going to get the cancer out of me and move on. 

Boob Voyage, Cancer. 

31 comments:

  1. Love you and support your decisions!!!

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  2. I will come out to help just say when. I'm also just a phone call away. In the mean time think about your boob options. Blow up some balloons stuff them down your shirt and try them out.

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  3. Oh honey, I am so sorry you have to go through this, I can't imagine the emotions you are and will be going through. You will be in my prayers and I pray for strength for you as well as your family. And that your body will be strong!
    -Cathryn Robinson-

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  4. Wish I was closer!! My way of helping g will be sending healing thoughts and prayers for you and your family. You are an extremely positive and active person. Soon enough you will look back at this "blip" on the radar and see how much you all have grown closer to each other and then... you will the see the positives of a scary situation! Hugs and prayers Mary!

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  5. Mary, my heart is hurting for you but I am praying now and will continue to pray for you and your family. We serve a mighty God who CAN do anything. I love you!!!

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  6. Oh Mary! I feel so bad you have to go through all this. You are one of the most energetic on the go people I know. I know this next year is going to be rough...but like you said, after this you won't have a black cloud of worry hanging over you the rest of your life. Let us all know what you need and we are all here to help. Sending lots of love and hugs your way.
    -Tisha Corallo-

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  7. I love you. I'm sorry. That shock, numb feeling sucks. <3

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  8. Mary, i am so sorry to hear this devastating news. I will keep your family and you in our prayers. I know someone who is also a BC survivor but had to go through chemo and all that. I HATE cancer! That being said, i admire your strength, wisdom and courage. I'm sure that wasnt easy to share with us. I think meeting with a counselor is a brilliant idea! I will ask my friend for some ideas. Hang in there, we love you and your family!

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  9. Mary. Sorry to hear. You sound educated and ready to beat this though! Thoughts go out to you and please holler if I can be of any help. And update us so we can help your fight. -Christine

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  10. We have been FB friends for awhile. I'm sorry I don't even really recall how or since when. But i read this tonight and I cry for you like i would for any dear close friend. I am sorry. I will pray for you in my heart and in voice, out loud for strength and healing.

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  11. Thank you for sharing. I am so sorry you are having to go through this. **HUGS** I know I'm far away from you, but I can offer you love and support. You are greater than this, and it will never define you. Only you can define you.

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  12. Mary, wow..I'm so sorry to hear this news. Reading your blog just confirms what a strong and courageous woman you are! We will be praying for you and your family and are here to help you through this. Kick cancers ass! Hugs, Lisa Chan-Shurtleff

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  13. I'm so sorry to hear this news, Mary. I can't imagine the array of emotions (or at moments, lack of emotion) that your cancer diagnosis is bringing with it. I totally respect your decision to be surgically aggressive. Living life in fear of recurrence is not a way to live. I'll be thinking of you and your beautiful family as you do what is needed to get over this (scary, awful) hurdle. ---Becca

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  14. Cancer sucks! I'm sorry you're facing this, but I support your decision to rid yourself of it once and for all, right from the get go! If there is anything I can do for you or for your family, please let me know! Love and prayers for you all <3

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  15. Mary, first of all thank you so much for being so vulnerable enough to share this part of your life with us. Second, I will definitely be praying for you and your family. This will not be an easy battle for you, but I know your a very strong lady who will fight for all she is worth. Please keep us updated when you can especially about specific prayer requests. I will start praying for all of you immediately. Thanks again for letting into this part of your life. Hugs to you and your family.

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  16. I'll figure out a way to get there sometime. Gma will insist and you can't argue with Gma.

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  17. Mary I am so sorry to hear this news! I can only imagine what an overwhelming and emotional roller coaster this has been so far :( I've heard that Michelle's place is a great resource so I am glad you have already checked it out. I have a few coworkers I know that are wonderful women and have fought this battle. If you would like to talk with them more for support I can give you their information. Please know you have friends that are here to help!!

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  18. So sorry to hear this news. Anything I can do to help just let me know. We live close enough. Prayers being sent your way.

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  19. I am so sorry to hear this news. I will be praying for God to grant you strength and a swift recovery.

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  20. Mary, so sorry to hear. Our thoughts are with you.

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  21. Mary....so sorry to hear about this..but you are a very strong woman. Just another bump in the road but you will conquer! My aunt has had a dble so if there's any questions, please let me know and I can ask her. Thinking of you guys always..miss you so much! Love ya!

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  22. A year from now we will be celebrating your victory!

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  23. You and Keith are two of the most amazing people I've ever met. Yes, you have a wonderful and super supportive husband! Sounds like you have a professional group of doctors and specialists involved. They will for sure take care of you, and I know you'll make a full recovery. Stay positive! You're surrounded by Angels now, and will be in our prayers each and every day. Jodi and I have been dealing with the "C" word with both her children this year. And today's doctors are amazing. You will get through this. Please look into Xango Mangosteen juice...it has done miracles for many. Can't wait to see you and your family here in S.D. God Bless Mary!

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  24. Mary. Oh Mary. Hugs to you.

    Three things:

    1. Cherish what you will learn from this journey.

    2. Good things happen to good people. That good thing is, you're going to win this fight, and in the near future, you will be the rock for someone else, someone you probably don't know yet, as she struggles through her diagnosis and treatment.

    3. For some reason, I'm not worried about you. I just kind of know you're going to kick its ass.

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  25. ♥♡♥♡♥ from Texas and all of us!

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  26. You are amazing. I hope you feel all the love that holds you, Schu Family!

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  27. Dear Mary-Mommy,
    Thank you for sharing your feelings and all of those emotions in your blog. I was shocked reading it but I am convinced, you'll go through the therapy and surgery as a power-woman and get better soon! I will talk to my partner and might be able to help you. You have always been there for me and given a wonderful year to me. Maybe I can "jump in", catch a flight and help you out for a month, take care of the kids and help you in the household. I'd love to help - always. I'm praying for you and your family.
    Sending you lots of love from Germany
    yours German daughter Anna

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  28. Mary,
    What shocking news to hear and brave of you to share in your blog. I have always admired you from our years in Hardin and that admiration was renewed when we became fb friends after all these years. I have enjoyed watching your family escapades via fb and look forward to many more years of watching you and your family grow stronger. Love, hugs and lots of prayers, Tammy

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  29. Mary,
    I am so sorry that you have to go through this! Please know that my thoughts and prayers are with you and your family.
    Linda Norman

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